Busy busy busy

It seemed as if it never stopped today. I started early as Kelly had to be to work early. That put me on bus duty after a long night of attempting to sleep sitting up.  While I did sleep some, my back was protesting loudly. Karissa got on the bus, I got the chickens out and read the paper.  I got up the energy to make breakfast, shower and get dressed. At that point, I wanted to go back to bed.

Since I had heard nothing from the oxygen people, I decided to check in.  Dr. Andersen reaffirmed that it was ordered and who with.  More on that later.

Headed to acupuncture feeling tired. I got all "needled up" sitting up in a chair and promptly fell sound asleep. How I didn't fall on the floor is beyond me.  I don't know what magic he puts in those needles, but I'll keep going back.  From there I rushed back to Karissa's school for speech.  I was somewhat useless as I can only speak for a few minutes before my voice gives up completely.

After speech, we ran home and I quickly blended up something to eat, grabbed Karissa a snack, assembled the baby gift/tissue paper/card and dashed out the door again. Too bad I forgot to grab her Talmud Torah folder.  I stopped at Fred Meyer to get gas. Fortunately, Karissa loves to tell them what we need and "pay" so that is taken care of. I syringed in my lunch while they were pumping my gas. As it was a particularly unattractive shade of green today, I don't know what the pump jockey thought. From there, I took her to Kelly's office and dropped her off and then came all the way back across town to school for the baby shower. I know, I know, those of you who live in big cities. "All the way across town" is 8 miles. I know. Still.

The baby shower was wonderful, although my voice was completely shot, so I had to totally rely on the Dynavox for all communication. Lots of cute little girl clothes to ooohhh and ahhhh about.  By the end I was completely exhausted.

I came home in the glorious afternoon sunshine to rest a bit and wait for the oxygen people.  More on that later.

Karina was here for a couple of medical tests. It was nice to see her, looking lovely as always.  Glad she'll be back this weekend, not only because I miss her, but I also need some help with chores.  Sorry Karina.

I soaked up the glorious sun but I couldn't muster up the energy to do any of the zillions of things that need to be done.  Maybe if I could get some sleep, I would be a bit more functional.

Now it is after six. Kelly and Karissa get home and still there is no sign of the oxygen people.  Hmmm....
Kelly calls and leaves several messages. We have dinner and reading and, and, and. Finally someone calls back and says they'll have it out tonight. Someone else calls a half an hour later and says, oh, we'll have it out tonight. Another half hour later they call again and ask out about our insurance. Well, no, they cannot bring us anything unless we want to buy it from them, for  $3,000 because they are not contracted with our insurance.  WTF?  Why has no one asked this question until now, after two days?  We can call Northwest Medical. Great. We have an account with them. No can do, not without an order. Can the other company fax it to them. No. It has to come from the doctor. Call the OHSU after hours ENT. Jump through hoops. Explain the situation. Several more phone calls.  It is now 9:41 pm and it is on the way. This is still better than going to the ER tonight, though.

Gearing up for another big day tomorrow.  Massage, consult with herbalist/nutritionist, simulation day zero for radiation (remember to bring the suction machine...), and, finally, the BIG THIRD GRADE MUSICAL. Karissa is so excited that she went to bed a half hour early so she would be sure to be well rested for the show.  She not only knows all her lines and songs, but all of the dragon flies' dance as well, even though she's a tadpole.  I know Logan's mom will have made over the top adorable costumes.  One of the benefits of being in the same grade as the crafty mom. A little melancholy that I didn't get to help with the program, but better to be here to see it at least.

I put all the radiation appointments on the calendar. If I did it right, the last one should be on Karina's 19th birthday. Symbolic as my original diagnosis was on Karina's 13th birthday.  I hope this means that I will be cured of this once and for all.

Waiting for the oxygen to arrive and then a hot shower calls my name, as it does every night.

Until tomorrow...